Jonny Kennedy

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Label:Tonto Press
Languages:
English,English,
Manufacturer: Tonto Press

Editor Reviews:

Product Description:
Jonny Kennedy was the star of the unforgettable Emmy award-winning documentary The Boy Whose Skin Fell Off. He was an extraordinary character determined to live an ordinary life despite being born with the agonising condition Dystrophic Epidermolysis Bullosa (EB), which meant that his skin could literally fall off at the slightest touch. It was a daily struggle he faced with courage, determination and wit, offering inspiration to millions around the world. Tragically, Jonny was just 36 when he lost a final battle to skin cancer. This is his moving, honest and uplifting story. 'I feel very fortunate to have met such a special person and I will never forget him.' - Nell McAndrew

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Jonny Kennedy

Amazon Price: $14.62

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	Customer Reviews: Average Rating: Rating : - Highly recommend This book is a wonderful compliment to the 2003 biography on Jonny Kennedy. However, if you did not see the program, the book stands alone as a window into Jonny Kennedy's daily life, both in good times and bad. I do not recall having two intense emotions while reading, sobbing and smiling at the same moment, kudos to Mr Kennedy and Mr Stutter! Please do not miss out on the opportunity to read about this remarkable man. + See Full Customer Review

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WHEN JONNY KENNEDY was born in 1966 he had no skin below the knee of his right leg. ... Jonny Kennedy died at 36, and no one who watches The Boy Whose Skin Fell Off, ...

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The show on Jonny Kennedy was wonderful, not to see the pain he was in, but to ... Jonny Kennedy is one of the most courageous people I have ever heard about. ...

Kennedy says she is instinctively opposed to euthanasia but after almost four decades of caring for Jonny, she believes it should be an option in some circumstances.

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Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) -- which meant that his skin literally f...

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Jonny Kennedy

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Jonny Kennedy